Here are some insights and tips I wish I had known at the beginning of my journey:
It’s ok to feel overwhelmed
The emotional adjustment is as important as the physical one, and it’s completely normal to feel anxious, sad, or frustrated at first. Physically, it can take up to 8 weeks to fully recover from stoma surgery (Bladder & Bowel Community); however, emotionally, it can take much longer. Give yourself time to adapt, be kind to yourself and seek help from professionals if you’re feeling low in mood or depressed. Counselling helped me immensely in reframing my life after surgery.
You’re not alone
There are an estimated 205,000 living with a stoma in the UK (Colostomy UK. (2019) and there is a wonderful community on social media. Instagram was my gateway into the world of ostomates, and I was inspired by the work being done by the Respond ambassadors. They were the reasons why I became an ambassador. There are also support groups online and in-person, which can be invaluable for sharing experiences and signposting.
With the right products, stoma care gets easier
The first few weeks can be tough, but once you get the hang of it and find the right products, changing your bag and taking care of your skin becomes second nature. Initially, I suffered with skin irritation and leaky stoma bags, and it wasn’t until I realised I could switch dispensers and stoma bag suppliers that I started feeling more confident and began to appreciate life as an ostomate. Don’t be afraid of asking your stoma nurse for product samples, demonstrations or advice.
Diet and hydration
It’s recommended to start with a low fibre diet and to chew your food well for the first few weeks after your procedure (Leeds Teaching Hospitals NHS Trust. (2025). And then you can slowly introduce new foods and drink plenty of fluids. Over time, most people can return to a normal diet, but keep track of foods that cause you issues by keeping a food diary, which you can share with your family.
Ask for help
Don’t suffer in silence! Reach out to your stoma nurse, GP, counsellor or support groups for advice or reassurance. You don’t have to figure everything out alone.
Final thoughts
Remember: living with a stoma is a big change. With time, support, and self-compassion, you can lead a full and active life.
